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Top » Health » Conditions and Diseases » Genetic Disorders » Epidermolysis Bullosa  (16)

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Personal Pages  (4)

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• Health: Conditions and Diseases: Skin Disorders  (371)

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• DebRA International   - Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.

  » Cristina's Castle in the Clouds - Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder..

  » DebRA Australia, Queensland Branch - Features disorder information, organization background, publications, photo gallery, and information about the NSW branch..

  » DebRA Canada - Includes articles, news, and information about this genetic disorder..

  » DebRA of America - Offers information, news, newsletters, support, and resources..

  » DebRA UK - Features organization background, information about the disorder, fundraising and research details, and news..

  » EB Info World - Information, mailing list, pictures, and help for new parents..

  » EB Medical Research Foundation - A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information..

  » Epidermolysis Bullosa - Through the Eyes of a Patient - A young woman presents medical information, research updates, photographs, recipes, and support group listings, as well as her own experiences with the condition..

  » International EB Forum - Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals..

  » Jonathan's EBzone - The author shares her son Jonathan's crusade and life with Epidermolysis Bullosa (EB), a rare genetic disorder..

  » Yahoo! Groups: EBworld - Mailing list support group for parents, patients, and those interested in learning about disease..

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